Ehlers Danlos Syndrome/HSD Impacts on Women's Health
The impacts of Ehlers Danlos Syndrome/Hypermobility Spectrum Disorders (EDS/HSD) on Women’s Health - 1 CPD point.
Ehlers Danlos Syndrome/Hypermobility Spectrum Disorders (EDS/HSD) are hereditary connective tissue disorders which disproportionately affect women, and have prolonged & delayed diagnosis. Over the last two decades it has become clear that their clinical features are not limited to musculoskeletal involvement (joint instability & pain), but are multi-systemic. EDS/HSD require a multidisciplinary and multi-factorial approach - for both guidance and alleviation of symptoms & long term management of the condition. Exercise prescription plays an ever increasing role in both acute joint rehabilitation & longer term systemic management - including an understanding of a women’s health focus of this condition. Keep an eye out for our other e-courses, handouts, podcasts and other resources available for download, created for passionate health practitioners from interdisciplinary WHC knowledge.
Learning Outcomes
At the completion of this webinar you will have:
1. An understanding of the pathophysiology & background of EDS/HSD
2. Overview of the adjunct health problems that occur with EDS/HSD -including OI/POTS, Anxiety, GI issues, Chronic Pain, CFS/ME
3. An understanding of the impacts of EDS/HSD on Women’s Health conditions - including considerations for pelvic floor, pregnancy, birth, gynaecological & urological considerations
4. Confidence in exercise indications and contraindications for EDS/HSD patients.
Presented by Jacqui Main - AEP
Jacqui completed a Bachelor of Applied Science Human Movement and Graduate Diploma of Exercise Rehabilitation in Ballarat. Since graduating in 2005, Jacqui has worked in the hospital setting, occupational rehabilitation, corporate health and university lecturing - where her main passion lies is in chronic fatigue and pain syndromes and Ehlers Danlos Syndrome (EDS) / Hypermobility Spectrum Disorders (HSD). Jacqui has personal experience of these conditions - so is a huge advocate for her patients & a passionate practitioner - helping people like her, that have often been dismissed, misunderstood, and unsupported, in their invisible illness journey.
Jacqui spends many hours keeping up with the research and fundraising for these areas and recently attended (virtually) the Ehlers Danlos Society conference in the USA, listening in from 12AM-7AM for 3 days (!). Outside of work, Jacqui spends her time as a single Mum with her 14 month old little boy Harvey, taking walks, exploring and developing his love of physical activity and the outdoors.